An autism diagnosis does not just affect the individual diagnosed, but the family, caregivers, and friends that interact with that individual or child. It is often challenging to find other people who understand what you are going through, or the daily challenges you may face caring for someone with autism. These top autism podcasts provide information as well as practical experiences of those who live, work and interact with those who have autism.

Joyriding in Autismland: Autism Podcast with Kid Gigawatt

“Launched by parents of an infectiously funny and mostly happy boy on the spectrum, the Joyriding in Autismland podcast chats with ASD parents, kiddos, therapists, writers, and artists about the unexpected, charming, and funny moments with Autism. Because laughing is the best vacation.”

Listen here: https://player.fm/series/joyriding-in-autismland-autism-podcast-with-kid-gigawatt

 

All Autism Talk

“Connecting the Autism Community One Podcast at a Time — Our podcast offers a friendly conversation with inspiring individuals in the autism community. Our aim is to provide valuable insights and information as well as access to support in communities throughout the United States. Join us!”

Listen here: https://player.fm/series/all-autism-talk

 

Autism Spectrum Radio

“Our show offers a great weekly conversation to inspire, inform and support families and individuals living with autism. We offer practical information for parents of children of all ages. The show explores treatment topics and recent research. We have a variety of guests to share their expertise, experience and resources.” Spectrum is leading the way on autism’s hottest research topics, so it comes as no surprise that their podcast is just as educational and intriguing as their other media. You can listen to it on Spotify. Check this one out for frequent summaries on the newest studies and opinion pieces related to autism.

Listen here: https://player.fm/series/autism-spectrum-radio-1243634

Early Identification of Developmental Delays in Children – Dr. Sharief Taraman

Dr. Sharief Taraman is a neurologist at Children’s Health of Orange County (CHOC). In this episode, he discusses how diagnostic screening can help identify developmental delays in children. Early identification and diagnosis, he says, can help families get the right treatment right away.

Listen here: https://open.spotify.com/episode/0aSproOlGSUEgMuy2QGKao?go=1&sp_cid=702ee128ed4681e02aeaacfee7aebe53&utm_source=embed_player_p&utm_medium=desktop&nd=1

 

The Role of Genetics in Autism, Explained

Wendy Chung, MD, PhD, director of clinical research at the Simons Foundation Autism Research Foundation, works as a molecular geneticist and physician and is something of a genetic detective who traces an individual’s symptoms to a particular genetic anomaly. In this podcast, she breaks down what we know about the causes of autism.

Listen here: https://open.spotify.com/episode/5Dhe3iMm8ueMbi6Tp8S2mC?go=1&sp_cid=49d57bbedd77e4ceccd64d83f55a34c0&utm_source=embed_player_p&utm_medium=desktop&nd=1

Autism Resource Mom – Autism Support and Information from the Best Expert, a Mom

A mother’s intuition and drive to advocate for her kids can make her the best expert when it comes to her child’s care. That’s something Debora Smith understands to the core. She’s raising a son on the autism spectrum, and she founded Autism Resource Mom, a nonprofit organization that helps families navigate the complex world of autism. Listen in to find out how she’s turned her passion into helping others.

Listen here: https://open.spotify.com/episode/465sTHtZN0n8b9C3OPvQKc?go=1&sp_cid=49d57bbedd77e4ceccd64d83f55a34c0&utm_source=embed_player_p&utm_medium=desktop&nd=1

Medical Insurance for Autism Treatment – Understanding the Changing Landscape

Will your health insurance cover your child’s autism treatment? In this podcast, Amy Weinstock, Director of the Autism Insurance Resource Center at the University of Massachusetts, breaks down tools that can help families find out whether they are covered.

Listen here: https://open.spotify.com/episode/62JqtLHjBAOZu134X5N2HD?go=1&sp_cid=49d57bbedd77e4ceccd64d83f55a34c0&utm_source=embed_player_p&utm_medium=desktop&nd=1

All Autism Talk

“Connecting the Autism Community One Podcast at a Time” Our podcast offers a friendly conversation with inspiring individuals in the autism community. Our aim is to provide valuable insights and information as well as access to support in communities throughout the United States. Join us! Know an inspiring group or individual we should talk to? We would love to hear from you at allautismtalk@learnbehavioral.com

Listen here: https://player.fm/series/all-autism-talk

Local Autism Support Groups for Parents and Caregivers

At Lighthouse Autism Center, we understand firsthand the struggles that parents and caregivers face when raising a child with autism. It truly takes a village to care for a child with autism, but we understand that families also need support. We believe it’s important that a support network is in place for not only the individual with autism, but also for those who are helping care for them. Below is a list of local autism support groups. For more information, contact Lighthouse Autism Center at 574-387-4313..

*Lighthouse is not affiliated and does not officially support any of these groups.

Autism Support Groups:

• Autism Society of Indiana – Autism Society of Indiana (ASI) has Area Support Coordinators to assist individuals and family members living with autism. Coordinators are personally affected by autism (they may be a parent, family member, or an individual on the autism spectrum) and have a solid foundation of what it is like to have and manage an autism spectrum disorder. Because every part of Indiana has different needs, the coordinators work hard to know the services provided by local disability providers, community mental health centers, schools, hospitals, and state agencies. Also, check the ASI website for other programs they offer to support to families and individuals on the autism spectrum.
• Autism Quality of Life- Indiana Families – Private group with focus on sharing information and resources around services and experiences regarding families of both children and adults on the autism spectrum.
• Indiana ABA Parents (Parents Only) – Private group for parents and guardians of children who need intensive behavioral (ABA – Applied Behavior Analysis) therapy. Main focus of group is insurance funding for ABA therapy, but discussion may include other topics such as special education, speech, physical and occupational therapies and recreational activities. To be added to this group, request to join and answer the required questions.
• Indy Parents Special Needs Community – Private group for parents of children with developmental delays or disabilities find support and resources in the Indianapolis area. To be added to this group, request to join and answer the required questions.
• Columbus Autism Network Support Group – A support group of parents and caregivers in Columbus, IN, and the surrounding area.
• Autism Support Group of Goshen – The purpose of this group is support and encouragement for parents of children and adults on the autism spectrum. Grandparents, caregivers, and others committed to the well being of individuals on the autism spectrum are also welcome.
• Families United for Support and Encouragement (FUSE) – Families can engage with FUSE by phone, email social media or by attending any of their events. An online newsletter provides individuals and families with current disability news and information.
• Easter Seals Crossroads Autism Family Support Group – Group for parents or caregivers of a child with autism to meet other parents and caregivers at Parent Support Group meetings held every 3rd Wednesday of the month in the Autism Family Resource Center.
• TACA (The Autism Community in Action)- Indiana – TACA Indiana holds Autism Learning Seminars, Coffee Talks and family events throughout the year. Our seminars feature educational speakers on important topics for ASD families. Our Coffee Talks and family events provide more settings where families can informally network, share resources and speak with seasoned parents.
• The Hazel Center – The Hazel Center offers a social group for children with high functioning autism/Asperger’s, a parent support group, a sibling group and a childcare option so that the entire family can attend.
• Autism Speaks – Family members and friends of children and adults with autism are presented with many joys and many challenges throughout their lives. We hope these resources will help support you during the ups and downs and in between.
• Hamilton County Autism Support Group – The mission of the Hamilton County Autism Support Group is to provide community awareness of Autism and help support our families where every day lives are challenged with a child in their family with Autism. Autism is a complex developmental disability that typically appears during the first three years of life and is the result of a neurological disorder that affects the normal functioning of the brain, impacting development in the areas of social interaction and communication skills. 

For a full list of Indiana Autism Support groups, visit:

https://www.iidc.indiana.edu/pages/parent-groups

https://www.iidc.indiana.edu/irca/articles/parent-groups.html

What Is CPI Training?

We take a look at what CPI is and why it is so beneficial for de-escalating crises for children with autism in combination with several ABA strategies.

At Lighthouse Autism Center, safety is our priority, and we take great pride in the safety of our centers. Crisis Prevention Intervention (CPI) training is one of many safety precautions implemented at all Lighthouse Autism Centers. All of our employees receive weeks of training before beginning therapy with a child and are certified in First Aid, CPR, and CPI.

We’re going to take a closer look at what CPI is, the advantages of CPI techniques, and why we use them at the Lighthouse Autism Center.

What is CPI?

CPI is actually an organization, the Crisis Prevention Institution. CPI teaches a strategy called Non-Violent Crisis Intervention. This strategy is used for crisis prevention for a wide variety of people, including those with autism spectrum disorders. Non-violent crisis intervention training is designed to teach best practices for managing difficult situations and disruptive behaviors. Behavior technicians or Registered Behavior Technicians (RBTs) learn how to identify at-risk individuals and use nonverbal and verbal techniques to defuse unsafe behavior. This type of training not only ensures the utmost safety of the children at our centers but also the safety of our staff.

CPI Training

The Crisis Prevention Institute (CPI) is an international training organization that specializes in the safe management of disruptive and assaultive behavior. Since 1980, more than six million professionals have participated in CPI’s training, and thousands of organizations worldwide have successfully implemented CPI’s safe, non-harmful techniques and developed comprehensive crisis prevention and intervention plans. Only highly trained and certified CPI instructors are equipped to teach others CPI methods.

What is a CPI instructor?

A CPI instructor is someone who has gone through rigorous training through the CPI training organization and has been certified as an instructor. They are taught the tools and techniques to instruct and teach others to implement CPI strategies where needed. This certification requires regular re-training and active participation in training annually.

The Benefits of CPI at the Lighthouse Autism Center

There are a huge number of benefits when it comes to using CPI strategies. These are the most notable. 

• Teaches staff to recognize and respond to a crisis appropriately: CPI teaches our staff imperative decision-making skills to effectively match their response to the level of risk in the crisis. They learn to focus on the least restrictive response to ensure crises are de-escalated with as little fuss as possible. They are taught how to recognize the different stages of an escalating crisis and how to use evidence-based techniques to de-escalate.
• Safe physical intervention as a last resort: Staff are trained to respond appropriately to the level of risk. Sometimes de-escalation strategies don’t work, and the risk requires physical intervention. CPI teaches staff the best physical intervention strategies to ensure as little trauma as possible and to be able to immediately begin pairing again with their learner.
• It’s fully accredited: CPI is an evidence-based training program that is also fully accredited. The training is reviewed bi-annually to ensure all interventions are up to international standards.

Why We Use CPI at Lighthouse Autism Center

While CPI is an excellent non-violent crisis intervention strategy for a wide range of people. We find it aligns well with our practices for our learners mostly because it is so proactive and focuses on se-escalation strategies. People with autism have unique characteristics, and the nature of autism means that there are some special circumstances to consider when employing CPI techniques with them. 

Here are just a few of the CPI strategies we use for children with autism 

Learn How Autism Shows Up in Individual Children

Autism shows up in every person differently, and there is no such thing as one size fits all. Our staff works closely with a child’s parents, teachers, and other adults in their lives to learn about their specific anxiety signs and triggers. For example, some children with autism can clench their fists when they are happy or excited. Others do this when they are starting to feel anxious or frustrated. How does a particular child show anxiety?

It’s important to understand what triggers every child has. Do they like to be touched? Or should touching be avoided? Do they like schedules, and if so, what kind of schedules? What are their very favorite things? What has helped calm this child down in the past? You can see the other important questions that are asked in our Tips for Parents blog post.

These types of questions allow our staff to intervene using the right type of support to avoid escalation

Teach Communication Skills

Children with autism struggle to verbalize their needs and wants, which often leads to frustration. Our staff finds out how the child tends to communicate when they ask for things. They will also teach the child how to ask for specific things that might not be tangible.

We will figure out the best system for the child, whether that’s verbal, sign language, or something in between. Teaching children with autism these skills is an excellent way to avoid crises and escalating frustration.

Safely Using Holds as a Last Resort

CPI strategies only use physical interventions as the very last resort and only when the child’s behavior is posing more risk to their own safety than any physical hold does. While none of us ever want to have to physically intervene, we are taught to safely and effectively use physical interventions with children in a way reduces harm. Following any crisis, we also focus on re-pairing the relationship with our learners as soon as possible, going back to all of the fun and proactive interventions.

The Best Autism Treatment With Lighthouse Autism Center

At Lighthouse Autism Center, we believe that we can help every child reach their true potential with our innovative treatment approach to autism. CPI strategies are just one small facet of the incredible work that our staff do throughout our centers.

Don’t hesitate to contact us if you’d like to talk to someone about our treatments and how we can help your child.

Children with autism experience social delays, trouble communicating and various other developmental delays that can cause a family to experience extra stress and hardship. This can be particularly hard for siblings who may not understand that their brother and sister has autism and that may cause them to act, communicate or express themselves differently.

Below is a list of items a child who has a sibling with autism may experience. While some of them may be unavoidable, it is important parents are aware of these challenges and work to make sure extra care is not only taken for a child with autism but their siblings as well.

Effects of Autism on Siblings

Sibling Rivalry

It is natural to see rivalry’s develop between children in one household. Siblings may fight over toys, attention, or anything to feel like they are “first” or have “won.” This experience can particularly be heightened for a sibling for a child with autism who may be competing for their parents attention.

Feeling Left Out

Children with autism require extra care, time and attention from parents. This can leave other siblings feeling left out or not important. Parents should take extra care to make sure other siblings feel loved and cared for. This could take the form of picking an activity to do together each week or going on a special outing with each sibling every month.

Extra Responsibility

Siblings may feel like they have to pick up extra work around the house that their parents do not have time for due to the extra work of caring for a child with autism. While there is nothing wrong with siblings pitching in to help the entire family unit, be sure children aren’t taking on too much extra responsibility (or responsibilities that are inappropriate for their age).

Feeling of Rejection

Children may want to have a close relationship with their brother or sister with autism that may not be possible. Children with autism often struggle with touch (like hugging) or with social skills (like being able to express joy, sadness, etc…) which can make it challenging to develop a sibling bond or relationship. Be sure to educate fellow siblings that children with autism do not express needs, wants or emotions in the same way as them and that these things may take different forms depending on the child.

Verbal Skills and Your Child with Autism

Children with autism often struggle with verbal communication skills. A child may be unable to speak in full sentences, only say a few words, or simply unable to carry on a conversation or be unwilling to. Children with autism also may struggle in social environments where verbal communication with others is expected. They may not like being around other people, be unable to look at someone in the eye when they say something, or simply prefer to be alone.

Nonverbal Skills and Your Child with Autism

Many children with autism may be non-verbal, meaning they cannot communicate vocally. For children who are non-verbal, they often cannot communicate their wants and needs and that may leave them feeling frustrated. This can ultimately lead to other behaviors. For children who are non-verbal, it is important that a doctor, therapist, or trained professional work with that child to develop an effective way of communication, whether it is using a picture exchange system, a language software on an eye pad, or something else. It is crucial our children with autism have a way to communicate their wants and needs for their well being and for their quality of life.

Social Signs That May Indicate Your Child has Autism

1.) Non-verbal

2.) No eye-contact

3.) Will not respond to name

4.) Cannot use full sentences

5.) Only talks about one item or topic

6.) Cannot carry an appropriate conversation.

If you suspect your child may have autism, please contact Lighthouse Autism Center for more information on diagnosing your child and ABA therapy.

Something as simple as eating out with your child with autism can often be a stressful and anxiety inducing time for a family and child. Children on the autism spectrum can become easily overstimulated by the sounds, lighting, smells, and just the overall chaotic environment and unfamiliarity that restaurants bring. Overstimulation can be very overwhelming and mentally draining. Below, we have outlined some helpful and useful tips for taking your child with autism out to eat.

How to Take Your Autistic Child to a Restaurant

• If possible, go at a quiet time of day. Think early dinners around 4:00 or 5:00 pm if your families schedule allows it. Consider a late afternoon lunch if you are going out on the weekends. Early dinners and late lunches tend to be less busy for restaurants and will provide a quieter and less stimulating environment for your child.
• Consider allowing the child to use earplugs to mask some of the more unsettling sounds such as people chewing food, high pitched squeals of other children, and the sound of cutlery scraping against plates or tables being bussed or if loud music is being played at the restaurant.
• Ask to not be seated next to the kitchen, bathrooms or main entrance to help minimize the number of people that are walking by your table. Additionally, if there are any large parties ask to be seated away from them.
• Sit in the corner; this will make it so that there are only two walls that are open to sound.
• If possible, ask for a booth instead of a table, this will help provide a more contained environment for your child.
• Ask your server to give you a heads up if there will be any singing for a birthday at a table close by so that you can take your child outside for a few moments while they sing.
• Should your child get overstimulated take your child outside and let him/her walk around for a few moments or go sit in the car so that they can calm down.
• Keep your child’s food simple. Ask in advance about mixed textures and if there is an option to request the item plain. Consider ordering a food item that your child is already familiar with and that you know they will enjoy.
• Take breaks if needed. Go to a quiet space or unoccupied bathroom or walk outside for a brief sensory break as needed.
• Try to keep your child occupied while at dinner. This can mean coloring, books, scent kit or fidget toys, playing with an iPad, bringing a favorite toy – whatever your child enjoys!

ABA Therapy for Autism is a Full Time Therapy, Here’s Why.

Prospective parents visiting our center often ask the question, “how much is too much therapy?” At Lighthouse Autism Center, we specialize in full-time, center-based Applied Behavior Analysis (ABA) therapy. This is an intensive type of therapy that is the only therapy for children with autism endorsed by the U.S. Surgeon General. Our therapy is play-based and child-led, because we know that children learn best while having fun! We meet our learners where they are most motivated and use strategically selected items in our play spaces to conduct therapy. We also create realistic environments in our therapy centers so that our learners and learn and be more comfortable in these environments when they are in the community in the real situations, such as at the salon or at the grocery store.

Children with autism need consistent, targeted, therapy to minimize skill gaps. Intensive therapy, such as ABA, has been shown to be incredibly effective in helping children and adults with autism live more fulfilled and independent lives. Furthermore, the earlier children with autism begin this therapy, the more effective the therapy will be.

If we think of ABA therapy in the same way we think about school for our children, we will see that the time spent is equal. The average child is in a classroom for 6 to 8 hours a day, five days a week. They are being taught and instructed in the classroom and those lessons are carried over at home. ABA therapy is the same. Most of our children spend eight hours each day at our centers where they are being taught life skills, school skills, and working on decreasing inappropriate or problem behaviors. These same skills are also put into practice in a home setting.

While your child may be missing out on a formal academic or school setting to attend full-time ABA therapy, typically children with autism that are recommended for full-time ABA therapy are not quiet ready for a full-time school setting. At Lighthouse Autism Center, it is our goal to get our learners ready to transition into a academic school setting by working with them on the necessary skills and independence to do so. This is why early intervention is also crucial. If we can get the learner in full-time before academic ages, they likely do not need to miss out on a typical school routine and we can prevent inappropriate or problem behaviors before they develop. Additionally, if the learner is already at an academic age, full-time therapy allows them to make greater progress faster, and transition into a school setting even quicker.

When a child is diagnosed with autism, it affects the entire family. While we often think of the parents or caregivers as those primarily affected, siblings are deeply affected as well. So, as parents, we must ask ourselves, what can we do to help both our child with autism as well as their brothers and sisters?

Educate and Set Expectations

It is important to make sure siblings understand the diagnosis of their brother and sister and what that means. Sit down and have a conversation with your child about autism and what that may mean for their relationship with their sibling (ie: Sam can’t express his wants or needs verbally so he may scream or Sam hears things differently than other people and that’s why we need to turn the music down, etc…). Be sure to have open communication with your child and be sure to let them know it’s ok to ask questions. Furthermore, having a sibling with autism can often mean having unexpected and upsetting reactions with others who may not understand their diagnosis. Prepare your child for different scenarios they may find themselves in with friends, schoolmates, or even strangers, and how to properly and respectfully react to things they may hear or experience.

Quality Time

Often times, so much time is dedicated to the child with autism and their needs, that the siblings can begin to feel neglected, or “left out.” Make sure you’re spending time with all of your children. Consider setting up a special one-on-one activity once a month with each child, or plan activities the entire family can do together. This will ultimately create a stronger family that is prepared to deal with the challenges faced by raising a child with autism.