As with any travel plans, preparation is key. It is especially challenging when traveling with an autistic child. From finding autism-friendly destinations to transport options and even insurance, ensuring you prepare well will reduce risks and make the trip a happy experience for everyone.

Preparing for a Trip With Autistic Children 

Planning any family trip or vacation is always fun but also incredibly stressful. This becomes even more challenging when you need to prepare for a trip with an autistic child. Apart from the normal checklists any trip requires, parents who combine the challenges of autism and traveling have to consider many other factors.  

From managing your and your child’s autism-related travel anxiety to ensuring their safety and comfort in new environments, here are a few tips on how to reduce risks and increase the fun on your next trip. 

Planning the trip

The planning phase of the trip is crucial to travel for a person with autism. It requires extra attention and preparation to ensure that the child’s needs are met at every stage of the trip so that everyone can enjoy the vacation. 

Research your destination

Before you book anything, research your destination to ensure that it is suitable for your child. Highly stimulating experiences like amusement parks, playgrounds, and performance venues can be overwhelming for children, especially those living with sensory overload.  

Consider destinations like Sesame Place, the world’s first theme park to be designated as a certified autism center. They have trained staff who are knowledgeable about autism and how to provide support to individuals with sensory sensitivities as well as sensory guides to help families plan their visit and navigate the park. There are also quiet rooms where visitors can take a break from the noise and crowds and have some downtime.  

Here is a comprehensive list of questions you can forward to any prospective destination to assess their readiness to host you and your child: 

• Can you tell me how long the wait times are? 
• Where can we find our room or seat? 
• How long does the program, event, or attraction typically last? 
• What sets your location apart from others like it? 
• Do you offer sensory guides for your guests? 
• What type of training do your employees undergo, if any? 
• Are there any times when staff members won’t be available to assist me? 
• Do you have any employees who specialize in autism? 
• How many people are usually around? 
• Is the street typically busy? 
• What kind of view can we expect from our room or seat? 
• How noisy is it usually? 
• Is it generally quiet during the night? 
• Is it hot and humid outdoors? 
• What material are the seats/linen made of? Cloth, leather, or plastic? 
• Is it possible to receive a menu beforehand? 
• Am I allowed to bring my own food? 
• What kind of food substitutions are allowed? 
• How far away is our room from the pool and kitchen? 
• Do you use scented detergent or cleaners in the rooms? 
• Where is the garbage and waste collected, and how often is it done? 
• Is there a designated area where I can take my child if they become overwhelmed? 
• How easy is it to get to that space? 
• What safety procedures do you have in place in case of a medical emergency? 

Special travel insurance

Autism travel insurance is a type of travel insurance that’s specially designed to provide extra coverage and protection for people with autism when they’re traveling. Beyond normal travel coverage, special autism travel insurance can also cover additional expenses that may arise due to autism-related incidents.

For example, if someone who is autistic experiences a behavioral or sensory meltdown during their trip, the insurance can help cover any costs associated with that incident, like the cost of a hotel room or a medical professional’s assistance. 

Autism travel card

An autism travel card is a special card or document that autistic children should carry when they travel. It helps to let transportation officials and other service providers, like hotel staff, know that your child is autistic and might need some extra help or accommodations during their trip. 

The card usually has basic information like their name, age, and picture, along with details about their sensory needs, communication preferences, and any other support they might need. Combine the card with a list of your child’s specific issues so that if they get lost or wander off, adults who find them are able to respond accordingly.  

Different organizations or agencies might have their own version of the card, but they all serve the same purpose. 

Preparing your child

This is perhaps the most important aspect of the trip. Both you and your child may be entering an unfamiliar environment which can spark anxiety and serious behavioral reactions.  

Ensuring that your child is well prepared and ready to tackle these new challenges and changes to routine and environment will go a long way to making their and your trip enjoyable. 

Create a schedule and social story 

Detailed schedules should include the travel process, holiday activities, meals, and breaks. This will help your child feel more comfortable and reduce anxiety. 

It’s a great idea to illustrate the schedule in a picture and/or word social story. This will help them understand what to expect and feel more comfortable with the unfamiliar experience. 

Include pictures or descriptions of all aspects of the trip, especially when you combine autism and air travel. Make sure to illustrate security processes, the terminal, the airplane, hotel/accommodation, activities etc. You can also add sensory experiences that your child may encounter during the trip, such as ear-popping during takeoff and landing. 

These concepts require reinforcement. A useful technique is to get your child to explain the schedule back to you repeatedly. You can also mark the departure date on a calendar at least three weeks before and get them to mark each day off. 

Additional training

If you find your homespun efforts are falling a little short, then consider travel training for autism, a program that helps autistic children learn how to travel in a more structured way. It teaches them many of the skills and knowledge they need to be able to navigate the trip, while also helping prepare you as a parent. 

Travel training programs can vary depending on the specific program, but they usually include a mix of classroom instruction and hands-on training. These could include exposure therapy where the child can be acclimated to certain sensory stimuli like sand, snow, escalators, or even the feel of wearing a bathing suit. 

On the way

Release pent-up energy 

Travel often requires long periods of sitting still and being quiet, which can be challenging for children who have a lot of energy. To help your child relieve any pent-up energy before departure, encourage them to engage in high motor activity. 

Activities that involve gross motor movements, such as running or jumping on a trampoline, for approximately 20 minutes, can be especially helpful. This type of activity can help your child release energy and reduce feelings of restlessness, making it easier for them to remain calm and comfortable during the journey. Many airports now have child play spaces that would be ideal for a pre-flight activity session. 

Bring items of comfort along

Comforting items from home, such as a favorite blanket or toy, help your child feel more at ease in unfamiliar surroundings. You should also consider not washing certain items to keep the smell of home constantly present as a comfort in times of distress.  

Sensory supplies 

A good idea is to keep a bag of supplies in the car based on what you know about your child’s needs and their sensory sensitivities. Consider giving your child a small backpack with items they can access on their own as well. 

Include sensory blockers like headphones to help with noise hypersensitivity. Other helpful items for sensory relief can include portable fans, hand sanitizer, and moisture-wicking towels. 

While you’re there

Once you arrive at your destination, it is important to reinforce much of the preparation that was done with your child and ensure that the venue/accommodation can deliver on what was presented. You also need to be prepared for any eventuality you may not have considered.  

Establish a routine

On arrival, it is important to remind your child of all the preparation that was done and then establish a routine for the rest of the vacation. Use all the tools you would at home to make them immediately comfortable in the new space, and put up the schedule you prepared as a visual reference.  

Plan for sensory breaks 

Your child may need breaks from sensory stimulation, so plan for quiet or calming activities during the trip. This can include activities like reading, drawing, or playing with sensory toys. Assuming you booked at a certified autism center, the resort, hotel, or park may offer specially-designed facilities for this.  

Inform all service providers

Let hotel staff and tour guides know about your child’s needs in advance so they can be prepared to provide any necessary accommodations. It is, however, important to remind them when you arrive and during the stay, as staff can rotate, or your instructions may not make it all the way down to the cleaners, waiters, and other service staff.  

Have a backup plan

With all the planning and preparation in the world, there will always be situations that you cannot anticipate. In these cases, you need an emergency backup plan to mitigate any unforeseen stimuli, changes, or triggers that could overwhelm your child. 

This could include returning to your hotel room for a break or finding a quiet, less stimulating activity. To avoid unnecessary anxiety and distress, be prepared to stop any activity immediately to limit the impact on both you and your child.  

Lighthouse Autism Center, a partner on your autism journey

Planning for any changes in your child’s life is a challenge. Let Lighthouse Autism Center help you navigate these spaces through their innovative programs and products like their Lighthouse Fusion ABA Therapy and the numerous autism resources they house on their website. 

Autism Spectrum Disorder (ASD) diagnoses seem to be on the rise. Why is this? We investigate what current data reveals about autism rates, the disparities that exist, and why the statistics don’t necessarily tell the whole story. 

If There’s No Autism Epidemic, Why Are the Autism Statistics Climbing? 

Having just emerged from the throes of the COVID pandemic, it’s fair to say that we have become acutely aware of the many medical conditions that afflict us as a society. More recently, though, we are witness to another perceived crisis, the autism epidemic.  

Autism spectrum disorder (ASD) is a neurodevelopmental disorder that affects a person’s communication, social interaction, and behavior. It’s called a “spectrum” disorder because it affects people in different ways and to varying degrees.  

Some people with ASD may have difficulty with social cues or communicating their wants and needs, while others may struggle with repetitive behaviors or intense interests in specific topics. ASD is typically diagnosed in childhood and can affect a person throughout their life. 

According to multiple reports from the CDC and other medical journals, autism spectrum disorder statistics show sharp increases in the last few years. Yet experts say there is no need to be alarmed and that there is no epidemic. Let’s look at the data and investigate why the numbers continue to rise, and why experts remain calm. 

What the data says

According to several studies reported by the Center for Disease Control (CDC) as well as medical journals like Pediatrics and Autism Research, autism facts and statistics show a marked rise in the number of ASD diagnoses in children between the ages of 4 and 8, both in the USA and the rest of the world. 

Autism in the USA

A study published in the journal Pediatrics found that the rate of autism among children in the New York and New Jersey metropolitan areas tripled between 2000 and 2016.  

In the CDC’s 2021 follow-up report on autism in the USA, statistics showed similar increases to what was observed in New York and New Jersey. In 2016, one in 54 children had been diagnosed with autism by age 8, compared to 1 in 150 in 2000. 

Another study announced by the CDC in 2023 showed that the number had jumped significantly to 1 in every 36 children. This was up from 1 in 44 in 2021. 

Autism across the world 

A recent study published in the journal Autism Research revealed that the global prevalence of ASD has increased to around 100 in 10,000 (or 1 in 100) children. This is a significant rise from the 2012 global prevalence report, which estimated that 62 in 10,000 children had ASD. 

What are the reasons for the rise in numbers? 

So what do these statistics on autism really mean? And why don’t the experts seem to be worried? The answer, it appears, is layered. There are a number of factors that contributed to autism seeing an increase in statistics, but most of them point to better reporting rather than an increase in the actual number of cases. 

Better diagnoses

According to the team who conducted the New York and New Jersey study, the increase in autism spectrum disorder diagnosis is mainly due to the advancements in diagnostic capabilities and a greater understanding and awareness of the disorder. This is especially prevalent in diagnoses of ASD in children without intellectual disabilities.  

The study showed the percentage of 8-year-olds diagnosed with autism in New York and New Jersey without intellectual disabilities had increased more rapidly than those with intellectual disabilities. From 2000 to 2016, the percentage of those without intellectual disabilities increased five times, while the percentage of those with intellectual disabilities increased only twice. 

This is primarily attributed to advancements in diagnostic techniques rather than an increase in cases. 

The increase in autism prevalence in other parts of the world is also attributed to improvements in public awareness and healthcare systems that respond to autism. 

Now, children are diagnosed at an earlier stage, and regions such as Africa and the Middle East, which were previously underrepresented, have made progress in measuring autism prevalence. 

Racial and gender disparities

The New York and New Jersey study also showed that although the gap has decreased, there are still racial disparities in autism diagnoses. In the past, Black and Hispanic children were diagnosed with autism less frequently than white children.  

The recent analysis revealed that Black children without intellectual disabilities were 30% less likely to be diagnosed with autism than white children. 

According to a neurodiversity scholar at the College of William & Mary, too many marginalized individuals who belong to racial or gender minority groups may not receive an autism diagnosis due to less effective screening tools.  

As diagnostic tools and expertise continue to improve, more individuals from these groups may receive a diagnosis, leading to an increase in autism diagnoses overall. 

Autism in women and girls

Studies have shown that autism is often underdiagnosed in girls and women, as well as in people with less visible symptoms. The latest CDC report shows a 4-to-1 ratio of male-to-female diagnoses, but some scholars are not completely convinced that this accurately reflects the reality on the ground. 

In other research, some academics found that there are often more autistic female students than male students in college groups. And as one social worker has shown, many women are diagnosed with autism later in life, often after they’ve become mothers or grandmothers. This suggests that there are still many girls and women who are going undiagnosed today. 

As these diagnoses increase, so will the overall number of cases. 

Genetics

According to one analysis, around 83% of the risk of developing autism comes from inherited genetic factors. The study pointed out that autism is likely influenced by 2,000 to 3,000 genes, but only about 100 of them are consistently linked to the disorder. 

It was also shown that older parents are more likely to have autistic children, and recent trends show that more people are waiting longer to have children. This is flagged as another possible contributor to the increase in ASD prevalence. 

Lighthouse Autism Center makes life better

Given the increased awareness of ASD prevalence in the USA, it is important to seek out support systems and resources to help families with autistic children. The vast repository of autism resources and LAC’s innovative and groundbreaking Lighthouse Fusion ABA Therapy provide autistic children with the ideal path to holistic well-being. 

Applied Behavior Analysis (ABA) therapy is a necessary medical expense to help our autistic children thrive. But do our health insurance providers cover ABA therapy? Let’s find out how to check your coverage, how your coverage works, why you might not be covered, and how to get the best out of it.

How Do I Know if My Insurance Covers Aba Therapy?

Autism spectrum disorder (ASD) is a well-known and understood condition, yet we often don’t know whether our health insurance providers cover the treatments our autistic children need to thrive in the world. This is especially true of insurance coverage for ABA therapy. 

Applied Behavior Analysis (ABA) therapy is a treatment that helps people with autism spectrum disorder and other developmental disabilities improve their behavior and communication skills using behavioral principles. 

ABA typically involves working with a licensed ABA therapist, who designs and implements a personalized treatment plan for your child. The frequency and duration of therapy sessions may vary depending on their specific needs. Obviously, these treatments and sessions cost money. 

So does your insurance actually cover ABA therapy? To avoid any nasty surprises when we submit claims against our health insurance policy for ABA therapy, it is important to know the answer to this question beforehand. You’ll need to know your coverage works, why you might not be covered, and how to get the best out of your coverage. 

How does ABA coverage work?

Health insurance coverage for autism, and more specifically, ABA therapy insurance, is dependent on a few things. Firstly, you need to understand the type of health insurance plan you have.

In the past, there were very few formal regulations governing ABA therapy for autism and insurance coverage. More recently, however, state and federal governments introduced laws to ensure more uniform coverage across plans and divided the plans into two specific types: self-funded plans and fully insured plans.

Self-funded

These plans are regulated by federal laws rather than state laws. Under this plan, your employer decides what is covered and what isn’t. These plans are not mandated to cover ABA therapy, but as a result of federal mental health parity law requirements, ABA coverage on self-funded plans is increasing.

Fully insured

These are the most common plans offered by employers and must comply with state laws regarding coverage of ABA benefits. Under this type of plan, the insurance company decides what is covered and what is not covered, subject to state regulations. All 50 states mandate that these plans cover ABA. 

The following list will give you an idea of how fully insured plan regulations differ from state to state.

Arkansas

ABA therapy is covered if provided by a supervised, Board Certified Behavior Analyst.

California

A plan covering physical treatments must also cover mental health services. ABA is considered a covered treatment.

Delaware

ABA therapy and necessary items or equipment needed for treatment are covered.

Florida

ABA therapy is covered under state-regulated plans. If you were diagnosed with a developmental disability at age eight or younger, you are eligible for coverage. If you’re over 18, you will still receive coverage as long as you’re still in high school. Coverage for autism in Florida is capped at $36,000 per annum, with a lifetime limit of $200,000.

Georgia

ABA is not explicitly covered in Georgia.

Indiana

In Indiana, ABA is not explicitly covered, but treatment for autism and related disorders can’t be subject to limits or deductibles.

Massachusetts

ABA therapy is covered under MassHealth Standard, CommonHealth, and Family Assistance. There are age limits, but private, fully funded options are available too.

Montana

ABA is not explicitly mentioned, but treatment for autism spectrum disorder can be capped at $50,000 per year for children under eight.

New Hampshire

Coverage for autism is covered under state-regulated plans. Coverage is capped at $36,000 per year for individuals aged 0 to 12 and $27,000 per year for those aged 12 to 21.

It is crucial, however, to check your plan properly. While all 50 states include ABA therapy and autism treatments in their base requirement, some may not enforce full coverage as part of the state regulation. 

How to find out if you’re covered

The first step is to establish which type of plan you’re on. Call your employer’s health insurance representative (usually the HR department) to find out exactly which plan you are on. Once you know if you’re on a self-funded or fully insured plan, you need to find out if you have ABA insurance coverage.

When talking to your health insurance representative about insurance for ABA therapy, you need to ask the following questions: 

1. Does my current plan cover the screening, diagnosis, and treatment of autism spectrum disorder?
2. Does the plan cover ABA therapy?
3. Can I obtain a copy of the Summary Plan Description (SPD) to review coverage details and specific exclusions in writing? It’s crucial to document coverage in writing for future reference.

Choosing a new or different plan

If your current plan does not offer sufficient cover, consider changing your plan. Most employers offer multiple plans, while some even offer both self-funded and fully insured options.

If you have the option of a fully insured plan, you should inquire about the state that regulates the plan, which is typically the state where the company is headquartered rather than your place of residence. 

You should also ask whether it is a small group or large group plan. You can then check whether the state that regulates the fully insured plan mandates coverage in the type of plan offered by your company.

Child-only insurance

Young children with autism often require up to 40 hours of ABA therapy per week, making a child-only insurance plan a wise financial decision. This will allow your child to receive the recommended amount of therapy necessary to reach their full potential.

You can go through the Healthcare Marketplace to obtain a child-only insurance plan. The ABA benefit is included in the “Essential Health Benefits” package, which is mandatory for all Marketplace plans in Texas and Colorado.

It’s important to note that Healthcare Marketplace plans can only be purchased during designated Open Enrollment periods.

How to get the most out of your coverage

Once you have selected a plan that suits your needs and budget, you should spend time interrogating the details of ABA therapy for autism and the insurance coverage per benefit. Knowing how your plan works will empower you to extract as much value as possible without incurring additional costs. Here are some benefits and rules you should keep in mind when using your insurance. 

Deductibles

The deductible is the amount you need to pay before your insurance starts contributing. You’ll have to pay this every year.

Copayment or coinsurance

You’ll either have a copay or a coinsurance. A copay is a fixed amount you pay per visit, including for ABA therapy. Coinsurance is a percentage of the total charges you’re responsible for paying after you’ve paid the deductible.

Out-of-pocket maximum

This is the highest amount you’ll have to pay in a year. Once you reach it, you won’t have to pay any other out-of-pocket expenses for ABA therapy for the remainder of the year. Like your deductible, the out-of-pocket maximum resets each year.

Documentation requirements

Experts recommend that a good insurance plan requires ongoing documentation of your child’s progress. Your child’s Registered Behavior Technician (RBT) will need to submit documentation to show that the treatment is effective. A Board Certified Behavior Analyst (BCBA) will review the progress reports. Although you are not responsible for creating these reports, they are a crucial component of ABA therapy.

In-network practitioners

Use therapists and Board Certified Behavior Analysts (BCBAs) who are in-network with your insurance provider.

Pre-authorizations

Make sure to submit all necessary paperwork before beginning ABA therapy sessions to be certain the costs have been authorized. Failing to do so could leave you responsible for paying the entire bill. A formal diagnosis of autism spectrum disorder and a comprehensive behavior assessment are generally required for ABA therapy.

Lighthouse Autism Center covers your autism treatment needs

Lighthouse Autism Center meets the requirements of most health insurance plans. Through diligent use of your insurance, you can take full advantage of our Lighthouse Fusion ABA Therapy and the many other autism resources available from the Lighthouse Autism Center. 

It’s difficult to know when, or even if, you should move your autistic child from ABA therapy to a mainstream school. We take a look at all the different elements you need to factor into your decision so that you can make the right choice for your child and family.

Moving From ABA Therapy to a Mainstream School 

As a parent to a child with autism, you don’t have to worry about asking yourself whether you understand “what is school readiness” or “why is school readiness important” if you’ve been working with an ABA therapy provider. ABA therapy is an important tool in helping your child gain the specific skills they need to ready them for a transition into a traditional schooling environment and to ensure they tick all the boxes on a school readiness checklist.  

However, there is still a lot for you as a parent to understand if you’ve been thinking about when to transition your autistic child into a mainstream school, and you may even have doubts and questions about the process (you can also find out more about autism with our dedicated autism resources).  

This is why we’re going to take a closer look at why the move into a traditional school is important for so many children with autism, the pros and cons you may need to consider, and many other important elements related to this transition. 

Can my child with autism fit into a regular school?

As a parent, the first question you’ll probably ask long before you make any decisions is “Will my child manage in a regular school environment?” The good news is that an overwhelming majority of autistic children are placed in a typical school environment. The article “Educating Autistic Children”, written by Aubyn Stahmer and Laura Schreibman from the American Federation of Teachers, shares how 89% of autistic children attend regular public schools (even if the time they spend in a regular classroom may vary depending on their individual needs).  

There’s no doubt that it may not be as easy for many children with autism to adapt to a mainstream school, but they can make the switch from an ABA therapy program with the right skills and support. 

Should my child with autism transition to a school environment?

But as you’ve undoubtedly realized yourself, just because your child can attend a mainstream school doesn’t automatically mean that they should. There are various pros and cons for a child with autism entering the traditional school system that you need to consider first. Let’s unpack the advantages and disadvantages that your autistic child may experience in a mainstream schooling environment. 

The pros of attending a mainstream school

There are many advantages to moving a child  with autism into a regular school. These include: 

• A child with autism may feel better knowing they are included in a regular school with other children, even if they know they are different from their peers. 
• A mainstream school environment will help them develop the social skills to navigate life both during and after school, directly from their peers 
• It will help your child with autism develop relationships outside of their immediate family or therapists they work with in other programs 
• Public schooling is not only free, but many public schools offer support to help an child with an autism diagnosis make progress in a traditional classroom, such as Individualized Educational Plans (IEPs). 
• Your child will play an important role in helping neurotypical children better understand neurodivergent children through their daily interactions. 

The cons of attending a mainstream school 

However, just as there are advantages, there are also disadvantages that may affect an child with autism in a regular school. These include: 

• Your child may feel left out in a mainstream school if their social skills are lacking. 
• Neurotypical children may not understand the differences children with autism have which could lead to isolation or difficulty connecting to peers. 
• As much as a mainstream school may offer some degree of support to your child with autism, there may be a lack of teaching resources and academic support to empower your child’s success at school. Though teacher may have the best of intentions, they might not have the resources to support your child the way they want to. 
• Your child’s confidence may suffer if they aren’t able to keep up academically with their peers. 
• Depending on their symptoms of autism , your child may struggle with handling the day-to-day tasks of a regular day at school, such as making sure you’re at the right class on time or navigating a large school building. 
• Negative experiences may lead to additional negative outcomes as your child with autism grows older.  

Ultimately, it depends on your child as an individual 

It’s undoubtedly difficult to weigh up these pros and cons, but ultimately, the decision to move a child from ABA therapy into a mainstream schooling environment very much depends on your child and whether they meet the requirements for school readiness. While some autistic children have great difficulty adjusting to regular school life, it may be much easier for others to adapt to traditional schooling offerings. 

Signs that your child with autism is ready to start mainstream school 

While you are likely working with your ABA provider who can help you gauge when your child is ready to make the move into a mainstream school, it’s also important to better educate yourself on this important time in your child’s life. The article “When Is a Child Ready for Mainstreaming?” written by Yael Goldmintz-Rosenbaum, Ph.D., and Susan J. Schwartz, MAEd, covers this topic for the Child Mind Institute, an independent nonprofit that works with children struggling with mental health and learning disorders.  

In this piece, they identify four important factors to keep in mind when deciding to move your child into mainstream schooling, which we go through in detail below. 

School Readiness Checklist

These are the four elements that you should consider part of your school readiness checklist for your autistic child: 

1. What grade is your child going into? 

There are specific years when children are introduced to new academic challenges, and these could be very difficult or even too much for an autistic child to handle. It’s important to make sure that your autistic child has the necessary skills to meet these demands before you move them into a specific grade at a regular school. 
 

2. Can your child meet expectations in the new class?

An child with autism who may not  have the cognitive skills to match their peers may become demoralized, resulting in them falling even further behind. It’s recommended that your child undergo testing to see what their cognitive and academic strengths and weaknesses are to make sure they are put into a grade in a regular school environment where they are able to perform adequately. 
 

3. How resilient is your child?

If your child has the mental and emotional fortitude to push through and overcome their challenges, then they might be able to manage a mainstream school environment despite any academic or social weaknesses they may have. However, a child who isn’t quite as confident in this regard might need a more supportive schooling environment. 
 

4. Is your child comfortable being an advocate for themselves?

If your child is able to speak up and let the teacher know they don’t understand and they need help, they are more likely to manage in a traditional classroom. Children who aren’t quite so confident may not be able to express themselves properly and struggle with the learning process as a result. 

How to support your autistic child during this process 

One of the most important things to remember once you’ve decided to place your child in a mainstream school is that your ABA provider will be there to assist you. They will play a role in ensuring that your child with autism understands all the things to do to get ready for school, and some providers specifically teach goals to achieve school readiness skills in mock classroom set-ups. Your ABA provider should also engage with the school you’ve chosen to ensure it is properly equipped to meet your child’s needs and support the IEP as needed 

By working with your autistic child, ABA provider, and your chosen school, you’ll be able to help your child make the move from ABA therapy to mainstream schooling as easy as possible. 

Ensure your child is ready for a mainstream school with Lighthouse Autism Center

At Lighthouse Autism Center, we offer the Lighthouse Fusion ABA therapy program, a unique program that combines the best elements of ABA and speech therapy to ensure that your autistic child can achieve the best outcomes. We also provide a variety of autism resources to help you better understand autism and any issues related to it. 

IEPs are an important educational tool that can help autistic and other special-needs children develop the skills they need to navigate life. We explain what IEPs are, who is involved in their development, whether your child qualifies for an IEP and the benefits an IEP can provide.

Learn About Individualized Education Programs

Parents of  children with autism may have heard discussions of an IEP for their child, or may already be involved in the IEP process but are unsure of their role in it, or what qualifies a child for an IEP. In this blog, we’ll take a look at exactly what IEPs are, how they work, who’s involved in the IEP process, and how they can help your child. 

What is an IEP? 

IEP stands for Individualized Education Program. It is a specific type of education program that is aimed at helping special needs kids and is a part of the PreK-12 education system. This means an IEP aims to address the education needs of special-needs children from 3 to 21 years old, when in a public school system. 

The IEP must lay out achievable educational goals for a child for a school year, while also outlining what services will be necessary and available to achieve these goals.  

How does an IEP work?

The creation of an IEP consists of several phases.  

The process begins with an assessment and eligibility phase that aims to identify whether your child qualifies for special education services. This is usually initiated by a teacher (who must get consent from a parent or guardian) or a guardian who recognizes the child may be struggling with learning.All parents have the right to request their child be evalutated for an IEP. The evaluations and assessments are typically conducted by a multidisciplainary team within the school system.  

After the assessment is completed and it is determined by a group of qualified professionals that a child qualifies, the creation of the IEP itself will begin. The IEP will aim to create specific, detailed, and measurable short- and long-term goals, take into account any educational accommodations or modifications that are required, as well as ensuring that your child has all the support services they need. This may include supportssuch as occupational or speech therapy, assistive technology, additional time on tests, or transportation. 

As your child works through their IEP, progress will be recorded and feedback provided to you. An IEP is regularly reviewed to ensure that it adapts to your child’s needs as your child grows. These reviews are usually annual but could occur more frequently, depending on your child. Parents can also request to meet with their IEP team at anytime throughout the school year.  

Usually, from the age of 14, the IEP will also start to include post-school transition goals. The IEP will then look at what services are needed to help your child achieve these objectives and be ready for adult life. 

Who is involved in the creation of an IEP?

An IEP is a team effort that requires input from a child’s parents and education specialists. Other highly qualified health practitioners, such as behavioral specialists, psychologists, occupational therapists, and speech therapists, may also be required to assess your child’s needs.   

As a parent or guardian, you will have an opportunity to review the IEP and provide feedback. This way, you can flag any issues you have with the IEP with the people involved in putting it together and work on producing a program that best suits your child. 

It’s important to get as many of the original team involved in the IEP’s creation as possible for IEP reviews. 

How does a child qualify for an IEP?

There are 13 criteria that make a child eligible for an IEP under the Individuals with Disabilities Education Act (IDEA). These include: 

• Autism spectrum disorder (ASD) 
• Attention-deficit/hyperactivity disorder (ADHD) 

• Developmental delays 
• Emotional disorders or disturbances 
• Intellectual disabilities 
• Physical disabilities 
• Sensory impairments, such as hearing or vision impairments. 

A child is also covered if they are affected by multiple disabilities that are listed under the IDEA. 

The benefits of an IEP

Now that you understand how an IEP works, you might be wondering if it’s worth all the effort. Here are the benefits that an IEP offers to children who need it. 

Can help a child with special needs achieve better educational outcomes by providing an opportunity for success

Without access to additional supports in a traditional learning environment, children with special needs may be constantly behind their peers, not because they lack the ability to learn, but because material isn’t being taught in a way that works for them. An IEP can provide the child with an education that suits their needs or style of learning. 

It is a planned and structured system for learning for a special needs child

For the child, parent, or guardian, it’s reassuring to know that you can go into each lesson knowing what to expect from an educational program and how it is going to be presented. You can also look ahead to see how the educational process will unfold for your special needs child, and you also have an idea of each person’s role and what is expected of them. 

Has advanced measurable objectives to track progress more accurately

While all educational programs have some metrics that allow you to monitor a student’s progress, many IEPs take things a step further with SMART goals. SMART stands for Specific, Measurable, Attainable, Results-oriented, and Time-bound. This means that very detailed goals will be created for the child to reach, as opposed to aiming for any improvement in general. For example, a non-SMART goal would be that a child’s reading speed will improve, versus a SMART goal that says a child’s reading speed will improve to 150 words per minute. This elevates IEP goals and objectives above the goals and objectives of a traditional educational program. This also means that progress can be tracked and available to the parent at their request. 

Ensures a quality education is provided

An IEP is more than an ordinary educational program. IEPs fall under the IDEA, meaning there are even stricter requirements that will ensure a special needs child receives a high-quality education. For example, an IEP must be planned and taught by professional educators and other highly qualified individuals.What is written into an IEP is considered law, and must be follwed by the team working with the child.  
 

It caters specifically to the needs of an individual child

Not only is an IEP created that caters to the specific strengths and weaknesses of an individual child in mind, but many IEPs ensure that a special needs child gets additional one-on-one time with a teacher to improve their educational outcomes. 

Help your autistic child gain the skills they need at Lighthouse Autism Center

Lighthouse Autism Center is the home of the unique Lighthouse Fusion ABA therapy program, a special program that combines the best of ABA and speech therapy to help your autistic child achieve their goals. These, when combined with our in-depth autism resources, can provide your autistic child with a solid foundation to develop their skills so that they can successfully navigate through life. 

Medicaid helps millions of people across the United States to gain access to much-needed health services using special Medicaid waivers. These waivers allow states to provide services to those with specific needs, including low-income families that have an autistic family member. Learn more here.

Everything You Need to Know About Medicaid Waivers & Autism

If you’re in need of financial assistance for your autistic child, you may be able to get that help from Medicaid’s waiver program. Join us as we take a look at what Medicaid is, what they are, how a Medicaid waiver could help your autistic child and how you can apply for assistance.

What is Medicaid?

According to the official Medicaid website, “Medicaid provides health coverage to millions of Americans, including eligible low-income adults, children, pregnant women, elderly adults and people with disabilities. Medicaid is administered by states, according to federal requirements. The program is funded jointly by states and the federal government.”

In a nutshell, it’s a public health insurance program for those who can’t afford to pay for specific health-related services on their own. 

While certain federal government rules apply to all Medicaid programs, the programs are run by each state, meaning that specific rules may differ depending on which state you live in.

What is a Medicaid waiver?

A Medicaid waiver is any exception that’s made to existing Medicaid rules in order to cater for a certain individual’s or group’s specific needs. For example, if you’re disabled or have a chronic illness, instead of having to move into an institution to receive assistance, this waiver may make it possible for you to receive assistance in your own home. Each state decides how to implement waivers in order to meet the needs of its citizens. 

Different types of waiver programs

There are many different types of Medicaid waiver programs depending on where you live. That said, three types of waivers are most commonly used across the United States:

Section 1115 waivers

This type of waiver allows a state to experiment with different methods for operating their Medicaid programs, such as using new methods to provide care or additional funding. Basically, any program that can improve assistance to those who need Medicaid can be tested under this waiver.

Section 1915(b) waivers

This type of waiver allows a state to provide its own care delivery system which a Medicaid beneficiary is required to use. While this may sound restrictive compared to allowing a beneficiary to use any Medicaid provider of their choice, care delivery programs that are run under this waiver must demonstrate that it’s more cost-effective, efficient and represents the overall values of the Medicaid program.

Section 1915(c) waivers

This type of waiver allows a state to provide long-term care services to an individual in their own home or community instead of requiring them to seek care at an institution. 

How can a Medicaid waiver help autistic children?

Medicaid can provide financial assistance to families that need help meeting the needs of autistic children. In July 2014, the Centers for Medicare & Medicaid Services (CMS) federal agency made it clear that states are required to provide services to help treat Autism Spectrum Disorder (ASD) in children who are eligible for Medicaid and are under the age of 21. This is done through the Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit.

However, this does not mean that all autistic children will automatically qualify for Medicaid. While there is a Medicaid waiver for autism, the qualifying criteria may differ from state to state and you’ll need to apply for Medicaid to find out if you meet the requirements for assistance through the program. 

How do I apply for Medicaid?

Before you apply, it’s important to know who’s eligible for Medicaid assistance since there are specific requirements one has to meet in order to become a Medicaid beneficiary. Firstly, you must either be a citizen of the United States, a United States national, or have the relevant immigration status in order to qualify. Secondly, once you’ve met this baseline requirement, you need to find out if you qualify for Medicaid in your state. Other factors, such as household income, the size of your family, and age, will play a role in whether your application is successful or not. If you have any questions, you should reach out to your state Medicaid agency to learn more about Medicaid eligibility.

Since your application will be processed at state level, it may be useful to find out more about applying for Medicaid in your state on the Medicaid & CHIP How-To Information page on the Medicaid website. 

Lighthouse Autism Center is ready to help your family

At Lighthouse Autism Center we provide Lighthouse Fusion ABA therapy, an approach which combines ABA and speech therapy techniques to create a unique program which helps to improve your autistic child’s outcomes. You can also make use of our helpful autism resources to improve your understanding of autism and how to approach life with an autistic child. Contact us to learn more about how the Midwest’s leading autism therapy institution can assist your family.

Positive reinforcement for autistic children is a strategy to manage behavior and promote growth. Find out what positive reinforcers are, how they differ from bribery, and how to find the right ones for your child.  

Positive Behavior Support

As a parent of an autistic child, it isn’t always easy to know how to help your child negotiate daily life in a positive and productive way. Whether it’s a simple task that needs to be accomplished or complex problems that distress your child, it is important to find positive behavior strategies that work for both of you.  

Encouraging positive behavior can help autistic children recognize their own emotions and needs, as well as teach them how to ask for help or self-regulate when they are overwhelmed.  

Let’s find out how positive reinforcement can help your child, what reinforcers are, how to use them, and which ones are right for your child. 

What is positive reinforcement in autism?

Positive reinforcement helps autistic children to articulate their emotions and needs in a positive way without acting out or resorting to destructive behaviors like elopement or violence.  

You can use positive reinforcement at home by selecting suitable reinforcers like praise, games, sporting events and even tokens like stickers that accumulate towards earning a privilege or desired item or activity. Reinforcers may vary from child to child and finding ones that suit your child can be a rewarding process requiring observation, analysis, as well as trial and error. 

Why use positive reinforcement?

Reinforcers for autism have proved to yield the best results and is largely recognized as the most ethical use of Applied Behavior Analysis therapy (ABA), the foundation for using learning to help increase or decrease certain behaviors in autistic children. 

What is negative reinforcement?

Negative reinforcement is when you remove something that creates discomfort or distress to your child to increase a desired behavior. 

For instance, if a child responds with extreme anger or aggression to loud music with physical outbursts, it should be communicated or demonstrated to the child that the music can be softened or removed if they request it in a calm manner.  

After teaching the child the appropriate response parents can provide opportunities for them to request the removal of the irritant calmly and achieve the desired goal.  

Punishment should not be used

Punishment is not an accepted practice. According to the Behavior Analyst Certification Board’s (BACB) Professional and Ethical Compliance Code for Behavior Analysts, punishing a child may not just further distress them but cause them to backslide into unhealthy behaviors. 

What is the difference between reinforcement and bribery?

As a parent of an autistic child, knowing the difference between bribery and positive reinforcement is key to the successful use of reinforcers.  

Bribes are generally offered to children without explaining what is expected from them or simply to stop an undesired behavior in the heat of the moment. This form of reward often entrenches bad habits in the child and often perpetuates a pattern of extracting rewards rather than learning how to articulate needs.   

Reinforcers, on the other hand, are not chosen and implemented arbitrarily. They form part of a much broader strategy and employ analysis as well as tried and tested techniques that do not entrench a pattern of unsustainable habits.  

How to use positive reinforcement

Positive reinforcement is a technique that ABA therapists use in treatment but also needs parents to implement at home. Here’s how you can use it to help your child.  

The ABCs of ABA

ABA practitioners use the ABC model to assess problem behaviors in autistic children. ABC is an acronym for Antecedent, Behavior, and Consequence. With the help of an ABA therapist, you can assess your own child’s behaviors using this model.  

• Antecedents refer to “what comes before” or triggers the behavior and can be anything from a situation or item to a time of day or even a topic of conversation.  

• Behavior is fairly self-explanatory and refers to the action that needs to be understood and changed.  

• Consequences refer to what happens immediately after the behavior is observed and, in the context of ABA, can result in reinforcing or punishing positive or negative behavior. 

Assessing the child’s needs

Every autistic child’s situation is unique. From environment to family dynamics and where on the spectrum they fall, as a parent, it is important to work with ABA therapists to observe and evaluate the exact needs of your child and what reinforcers to use. 

Without a proper understanding of these factors, positive reinforcement interventions may not work properly and may even have the opposite effect. Assessments will include but are not limited to: 

• Past motivations  
• Interviews with the child to understand their likes and dislikes 
• Assessing the child’s main triggers (i.e., what do they desire or find difficult to attain?)  

Finding the right reinforcers for the child

Once you and the therapist have done a full assessment, you will move on to selecting the right reinforcers for your child. These can range from simple things like praise to more involved reinforcers where praise, for instance, is combined with a toy and activity to effect a positive response. 

It is important that parents enlist the support of ABA therapists to do the assessments and identify the most effective reinforcers for their children. There isn’t a one-size-fits-all model, and using unsuitable reinforcers for your child could actively harm your child as well as negatively impact their behavior. 

How to use reinforcers effectively 

Once you and the team have identified the reinforcers, they need to be implemented in a controlled and structured manner. Otherwise, you run the risk of receding into bribery or unuseful habits. 

Here are a few guidelines on how you can optimize the use of reinforcers. 

• Reduce dependence on the reinforcer. At the beginning of the therapy, there will be intense use of the reinforcer to establish a pattern. However, it is important to phase it out as the new behavior becomes entrenched. 
• Always combine the reinforcer with praise and verbal encouragement until the verbal praise becomes the main reinforcer and not the item or activity. 
• Model the behavior you want to see in your child. Always practice what you preach! 

• Be clear and concise in your instructions. 
• Make sure your child understands as much as possible why they are doing something, rather than just doing it because they are told. 
• Try not to allow free access to the reinforcer as this may lead to the reinforcer losing its impact. Instead limit access to about 80% to keep the child engaged in the future.   
• Be aware of how you implement the reinforcer. Introducing it suddenly may actually reverse the effect, as many autistic children do not respond well to sudden changes. 
• Have a backup for when your child doesn’t succeed.

ABA at Lighthouse Autistic Center

If you want to see how positive reinforcement affects behavior look no further than the Lighthouse Autism Center. They are leaders in the implementation of positive reinforcement through their ground-breaking Lighthouse Fusion ABA Therapy program, which fuses the best practices of ABA and speech therapy into a one-of-a-kind clinical model that delivers better outcomes for children with autism. Combined with world-leading autism resources, LAC is the Midwest’s leading autism therapy institution. 

Children with autism may struggle with sensory issues that lead to sensory seeking or sensory avoiding behavior. We explore these two types of behavior, their causes, the problems they may create and how they can both lead to sensory overload.

Sensory Seeking vs Sensory Avoiding in Autistic Children

Many autistic children have a variety of sensory processing issues that can affect their behavior, of which the main two types are sensory seeking and sensory avoiding. Join us as we explore the difference between these two categories of sensory processing issues in autistic kids and how you can help them understand their sensory experience better.

Understanding autistic children who are sensory seeking

If your child prefers to get a lot of stimulation from their environment, they are likely sensory seeking. Autistic children who are sensory seeking are considered “hypo-responsive” and tend to exhibit the following sensory seeking symptoms or characteristics:

• Prefers to be moving
• Likes to smell things
• Enjoys being touched, tickled or massaged
• Has a habit of fidgeting with things
• Standing very close to people when talking to them
• Likes to jump, hop, spin, rock and other repetitive motions
• Will slam or thrust their body into things
• Enjoys touching objects and people
• Likes loud noises and enjoys making them
• Likes to put non-food items in their mouth and chew on things
• Enjoys engaging in risky behavior
• Prefers to go barefoot

What causes sensory seeking behavior?

As with autism, exactly what causes sensory seeking behavior is not yet known. We only know that some autistic children are under-responsive to sensory input, others are hyper-responsive and yet others are a mix of the two. Because of how their bodies experience and process sensory input, they will then engage in behavior that will help them meet their sensory needs.

The problems affecting those who are sensory seeking

If you have a sensory seeking child, it may have a negative impact on their life, especially if they do not learn how to manage their sensory needs in appropriate ways. Here are three examples of how a child may struggle if they are sensory seeking.

Might cause themselves physical harm

Firstly, a child may unknowingly engage in dangerous behavior to meet their sensory needs. For example, they may jump from dangerous heights or come up with their own risky stunts to stimulate themselves. 

Might be ostracized by others

Secondly, certain behaviors might provoke negative reactions from those around them. For example, if an autistic child randomly touches other children and adults without their consent, these people may choose to avoid the child.

Might struggle in learning spaces

Finally, they may struggle to pay attention due to the fact that they are constantly seeking out higher levels of stimulation. This could negatively impact learning and academic performance in a learning environment.

How to help those who are sensory seeking

Your first port of call when it comes to helping an autistic child who is sensory seeking is a professional, such as an occupational therapist, who will be able to directly assist your child with their sensory seeking behavior. 

There are also activities that you can engage in at home to help your child meet and manage their sensory needs. Some examples of these activities include:

• Jumping on a trampoline
• Bouncing on an exercise ball
• Climbing on a jungle gym
• Have a pillow fight
• Using a weighted vest
• Letting them play with specifically designed sensory toys, such as weighted toys, scented play-doh and sensory bins
• Practicing respecting personal boundaries
• Practicing asking and waiting for explicit consent before touching anyone

Understanding autistic children who are sensory avoiding

If your child prefers to avoid being stimulated by their environment, they are likely sensory avoiding. Autistic children who are sensory avoiding are considered “hyper-responsive” and tend to exhibit the following:

• Has a greater sensitivity for smells
• Easily startled by unexpected sounds or bright lights
• Avoids crowded areas in favor of quieter environments
• Filters out fewer sounds compared to neurotypical children, which means they “hear more”
• Likes to wear headphones or earplugs to block out unwanted sounds
• Incredibly sensitive to pain
• Doesn’t like clothes with certain textures or clothes that are too tight
• Finds seams or tags in clothes incredibly annoying
• Is very picky about what they like to eat
• Doesn’t like being touched, even if it’s affectionately or playfully
• Dislikes being barefoot

What causes sensory avoiding behavior?

As with autism, we don’t know what causes sensory avoiding behaviors. What we do know is that some autistic children are overstimulated by certain activities or situations, which they then try to avoid so as not to overwhelm themselves.

The problems affecting those who are sensory avoiding

Sensory avoiding behaviors can affect your child negatively, most especially if they do not learn healthy coping mechanisms to meet their sensory needs. Here are a few ways sensory avoiding behavior can impact your child’s life.

May avoid activities and environments to their detriment

A sensory avoidant child may develop anxiety around activities and environments that make them uncomfortable, even if these things would benefit them, such as playing games with their peers or exercising on a playground.

May struggle to make social connections

Connected to the point above, if an activity or space is uncomfortable for your child with autism, they are likely to avoid it, which could, in turn, cause them to withdraw from social situations. For example, if they don’t take part in school games during breaks or are anxious about attending birthday parties, they may struggle to make social connections with other children.

Another example is that while other children may enjoy playing on a bouncing castle and all the rough and tumble that comes with it, a sensory avoidant child may not. Consequently, they may have to deal with feelings of loneliness, frustration, anger, sadness or being “left out” when they are the odd person out in such situations.

How to help those who are sensory avoiding

Again, as with sensory seeking children, you should seek out specialists who can help your sensory avoidant child learn to manage their sensory challenges. An occupational therapist or other health professionals can help you address your child’s needs.

There are also various precautions you can take to help your sensory avoiding child not feel overwhelmed. Some examples of these include:

• Decluttering an environment
• Keeping a pair of noise-canceling headphones nearby
• Making sure their clothes are not too snug and are made from materials that they are comfortable wearing
• Trimming the labels off their clothes
• Considering a weighted vest or blanket to help them feel more comfortable when overstimulated
• Preparing a quiet, calming space for them at home so that they have an area to retreat to if needed

Autistic children can have both sensory seeking and sensory avoidant traits

While we’ve split sensory seeking and sensory avoiding into two sections, it’s important to note that some autistic children can have characteristics of both categories.

What about sensory overload?

Regardless of whether your child is sensory seeking or sensory avoidant, they can still experience sensory overload. Sensory overload is when your brain is overloaded by the sensory information it is receiving. The amount or type of sensory information that causes sensory overload differs from person to person.

Sensory overload symptoms

Here are some of the signs of sensory overload:

• Anxiety, irritability, stress, fear or panic
• Overexcitement or restlessness
• Physical discomfort
• Need to limit source of overload by covering ears or closing eyes
• Need to leave area or space where the cause of the sensory overload is
• Tantrums or “meltdowns”

How to help with sensory overload

Here are some tips for managing and coping with sensory overload:

• Take preemptive steps to avoid triggers that cause sensory overload for your child, such as asking for lights or sounds to be turned down. 
• Ensure you are able to easily leave the location so that your child has the space to recover from sensory overload. 
• Be prepared by making sure your child has enough rest the night before and is properly hydrated. 
• Have a sensory toolkit filled with items that can help your child calm down, such as noise canceling headphones, sunglasses, fidget spinners and other objects that can help your child relax. 
• Talk to a health professional about medications that might be useful in avoiding or minimizing the consequences of sensory overload. 
• If possible, make sure those around your child are aware that they might become overwhelmed by specific triggers and explain to them what those triggers are. 
• Most importantly: help your child identify and understand their own sensory needs and triggers as far as possible – this could go a long way in helping them learn to manage their sensory issues in healthy ways. 

Discover how Lighthouse Autism Centers can help your child

At Lighthouse Autism Center, we offer our unique Lighthouse Fusion® ABA therapy program which combines the best aspects of ABA and speech therapy. This program, as well as our autism resources, are vital in helping your child unlock their full potential.

The picture exchange communication system, or PECS, is a teaching system that can help an autistic child or another individual with speech difficulties improve their communication skills. We take a look at PECS’ role in ABA therapy and unpack how it works.

Picture Exchange Communication System and its use in ABA Therapy

Many autistic children have difficulties communicating verbally. PECS is one of the many tools we use in ABA therapy to help them increase their independence and improve their outcomes. Join us as we further unpack PECS, how it works, the benefits it offers, and more.

What is PECS?

The picture exchange communication system, or PECS, is a communication system that was developed in the USA in 1985 by Andy Bondy, Ph.D., and Lori Frost, M.S., CCC-SLP, the founders of Pyramid Educational Consultants, Inc. It is based on the book “Verbal Behavior” by B. F. Skinner. 

This augmentative or alternative communication system was first used to assist autistic preschool students who were part of the Delaware Autism Program. It is now also used to help people of all ages with communication difficulties that are caused by many conditions. 

How PECS works

One of the downsides to other programs and methods designed to help those with communication issues, such as sign language and picture point systems, is that they rely on the teacher to initiate communication with a student. This creates a situation where the student learns to only respond in communication and to never initiate it themselves. The main goal of PECS is to help address this by teaching students to communicate more spontaneously using specific prompting and reinforcement strategies and avoiding verbal prompts, as well as improving their functional communication skills. 

Implementing PECS

Regardless of whether you are using the PECS program for autism or other causes of communication-related challenges, it has a specific process that you need to follow.

Complete reinforcer sampling

Before the PECS protocol is implemented, it’s important to first complete “reinforcer sampling.” Reinforcer sampling simply refers to the creation of an inventory of activities, toys, or other items that the student likes so that these items can be used as motivators during PECS. 

This inventory is created using an assessment process that can be completed in numerous ways, such as asking caregivers, observing the student and what they choose most and least often, and presenting the learner with pairs of options to see what they like the most. The reinforcers that are chosen will need to be consistently appealing to the learner in order to assist with PECS.

The six phases of PECS

Phase 1: How to communicate

In phase one, the student learns to initiate communication by exchanging pictures for things they really want or activities they want to take part in with a second trainer, who is the student’s communicative partner. (These desirable items and activities were identified during the complete reinforcer sampling stage.)

Phase 2: Distance and persistence

During phase two, the student learns to use this skill of exchanging a picture to get something they want in different places. They learn to do this by seeking out their communicative partner. They are also taught to initiate communication with other communicative partners using the same system. This is accomplished using different desirable items and activities. 

Phase 3: Picture discrimination

During phase three, the student is now tasked with asking for two or more of their favorite things, using multiple pictures. These images are stored in a PECS Communication Book, which allows for easy removal and return of images used by the student.

Phase 4: Sentence structure

In phase four, the student learns to complete basic sentences using what are known as Sentence Strips. These strips begin with an “I want” picture, with the student adding the picture of the item they desire to the strip from the PECS Communication Book. Once the student has demonstrated the ability to make this request, additional detail is added to these statements using descriptors, including the number, color, shape, or size of the object that they want.

Phase 5: Responsive requesting

Phase five asks the student to engage with the question “What do you want?” and to respond using the skills and tools they learned in phase four. When asked this question, the student must use the Sentence Strips and pictures from their PECS Communication Book to provide an answer.

Phase 6: Commenting

In the final phase of PECS, the student learns to answer other questions such as “What do you see?”, “What do you hear?” and “What do you smell?”. This is done by teaching them to use additional phrases such as “I see,” “I hear,” and “I smell” on their sentence strips, expanding their requests beyond “I want.”

The benefit of PECS

There are many benefits to teaching using PECS. Here are some of the advantages that it offers to autistic children:

• Helps make communication a more understandable process
• Improves the initiation of communication
• Can decrease problem or negative behaviors
• Can help improve social skills and allow students to build relationships
• Easy to learn for a student’s partner
• Increases the use of speech in some learners

Find out more about Lighthouse Autism Centers and how we use PECS

At Lighthouse Autism Center, we provide PECS for autism treatment and to help our students achieve better outcomes. We also provide autism resources so that you can better navigate this spectrum disorder and more insight into our Lighthouse Fusion® ABA therapy program and how it can help your child.

Learn how assistive communication technology is used in ABA to improve social communication and behavior in autistic people.

Technology and ABA

Applied Behavior Analysis (ABA) is an indispensable tool used in the treatment of Autism Spectrum Disorder (ASD). Thus, it stands to reason that ABA therapy is inextricably linked to technological advancements that improve the quality of ABA for therapists and patients alike. 

Assistive communication devices for autism

Figuring out how to improve social communication skills in autism sits at the heart of ABA therapy. Many practitioners and patients often turn to technology for solutions. 

The development of assistive communication devices for autism has tracked the rise of technology, and these have been employed with great success in recent times. Here are some of the most innovative new developments in the technological dimension of ABA, focusing on assistive communication technologies and devices for autism. 

Augmented Reality (AR)

Studies have shown that Augmented Reality (AR) technology provides an enjoyable and stimulating environment, which reduces boredom in autistic people while increasing enjoyment and motivation. 

AR also improves social skills and communication in patients with an increased interest in the education process through participation.

In early experiments with Google Glass, the camera would interpret facial expressions of people for the patients and display a corresponding emoji. This provided therapists with a deeper understanding of the link between social situations and the behavior of autistic people. Additionally, the use of AR role-playing and interactive autism games for social skills significantly boosted the recognition of social cues. 

Virtual Reality (VR)

Although virtual reality (VR) has been around for a long time, it has only recently become more accessible and affordable. Head-mounted displays (HMDs) like Google’s Cardboard, which houses a smartphone loaded with a VR autism app, have demonstrated remarkable improvements in autistic people – especially with social functioning, emotion recognition, speech, and language. 

Video-modeling

Incorporating video into ABA is largely based on Albert Bandura’s social learning theory (1977). This simply means people learn by watching and copying each other. 

Video-modeling, according to modern parlance, is less threatening to autistic children than face-face modeling and seems to be more motivating. It also allows patients to focus on one or two skills at a time without overwhelming them. 

Mobile apps

There has been a surge in the development of applications or apps to turn our mobile devices, like tablets and phones, into assistive communication devices for autism. Here are a few apps that have successfully dealt with communication and behavioral issues in autistic patients.

Language and Cognitive Therapy for Children (MITA)

Operating System – Android and iOS

This app delivers an almost unlimited number of cognitive exercises for autistic children with speech delays. Having passed clinical studies, MITA (which stands for Mental Image Therapy for Autism) uses simple vocabulary with higher forms of language and adaptive activities specifically for early intervention. Other features include playtime rewards and offline viewing.

Symbotalk

Operating System – Android and iOS

Symbotalk helps autistic children to communicate verbally through flexible boards and sub-boards, as well as augmentative and alternative communication (AAC) systems. 

The app helps children associate symbols and pictures with audio. It also allows you to upload your own images and record your own voice to make it easier for the child. 

Proloquo2Go

Operating System – iOS

This is not a free app but has won awards for innovation in giving a voice to children who can’t speak. Autistic children who find speech and communication difficult are able to communicate complexity through a highly intuitive interface. 

Parents and therapists can configure grammar, while core words can be learned through associated movement. 

Leeloo

Operating System – Android and iOS

Based on augmentative and alternative communications (AAC) as well as picture exchange communication systems (PECS), Leeloo uses cards to match words and phrases to images. 

Once a card is selected, Leeloo reveals a list of words and phrases associated with that image, then reads out the word or phrase the child selects in up to 10 different voices. 

Otsimo

Operating System – Android and iOS

Otsimo improves both speech development and behavior in autistic children and adults. 

With over 50 games, the app supports ABA interventions through the provision of progress reports as well as the ability to personalize each game to the needs of the individual child.

ABC Autismo

Operating System – Android 

ABC Autismo focuses on enhancing learning in autistic children through the use of over 40 interactive activities that promote attention and focus. Therapists and psychologists also use it as an evaluation tool to assist in diagnosing autism and other mental disorders.

Autastico II

Operating System – Android 

Autastico II focuses on improving cognitive skills, attention, and motor coordination through activities, sound, and music. Unlike other apps that are primarily functional, Autastico II also emphasizes entertainment and fun through engaging content and striking graphics. 

Dino Tim

Operating System – Android 

Dino Tim is a fun learning app for autistic children. The app follows the storyline of Dino Tim and his family, who are kidnapped by witches. Children are then required to become heroes to rescue them from the witches by conquering over 100 puzzles and activities that boost motor skills and increase attention and concentration. 

Wearable assistive technologies (WAT)

Wearable assistive technologies (WAT) are making it possible for autistic people to re-enter classrooms and other clinical environments to learn and even venture into real-world social situations through the use of real-time feedback. 

As the technologies mature, autistic people can navigate social interaction using WAT like smartwatches with haptic responses, augmented reality headsets like Google Glass, and almost invisible hearing aids. 

Hearing aids

Modern hearing aids have become so advanced that they can assess the acoustics of a room or environment and then remove sounds that it doesn’t recognize as speech. 

Even more impressive is that some hearing aids can simulate high-definition sound for music and speech. Better still is that they can be configured and controlled using mobile devices like phones and tablets. 

Neural command

Neural command makes it possible for people to control devices simply by using their brainwaves. Not unlike common software that converts text to speech on our mobile phones, neural interfaces (although still in their infancy) are being developed to integrate with speech-generating devices that allow people with severe speech impediments to “talk” using their thoughts and specially designed headsets.

Robotics

Advances in robotics aid in teaching autistic children social skills while keeping them focused during their therapies.

A recent study using NAO, a robot created by SoftBank robotics, also showed that with appropriate software, robots can be used to assess autism in children through observing play and interaction.

Artificial Intelligence (AI) and machine learning

It has recently been established that machine learning models can help predict ABA treatment programs for children with ASD and significantly assist ABA practitioners in prioritizing resources for the management of ASD from diagnostics through to intervention. 

Lighthouse Autism Center

Lighthouse Autism Center is the Midwest’s leading autism therapy institution, with world-leading autism resources and a ground-breaking Lighthouse Fusion® ABA Therapy program that fuses the best practices of ABA and speech therapy into a one-of-a-kind clinical model that delivers better outcomes for children with autism.

The holidays are generally a period to look forward to for most children, but they can be stressful for children with autism due to their change in routine and potential for sensory overload. We have five quick tips to help you and your autistic child have a good time and enjoy the holidays.

5 Quick Tips for Celebrating Holidays with an Autistic Child

The holidays are a break to look forward to for most kids, but this time of year can be both exciting and overwhelming for children, especially those with an autism diagnosis. Whether it’s due to an unexpected change in schedule, overstimulation, or just the stress of the holiday season, this time of year can be challenging for autistic children.

Below, we have compiled a list of holiday tips to help your autistic child (and all children really!) manage the stress of the season so that your family can focus on what’s most important, enjoying time together.

1. Preparing to Support Your Autistic Child During the Holidays

The first thing you should do if you are planning a holiday trip, event, or gathering is ensure that your autistic child understands what might happen. Autistic children may not deal with change well, so it’s important to give them the tools to cope with the change to routine they might experience during this time of year. You can do things like, take them to visit somewhere before the event. For example, if a sibling is in a holiday program, you might take your child to visit the space before the day of the program several times, and explain to them what will take place. You can do that by showing them photos, and talking to your child about what to expect. Additionally, you can read them books about similar situations or show them photos of a place you plan to visit beforehand. 

2. Communication with others and your child is important

During the holidays, we often see family or friends that we haven’t seen for some time. Your family and friends may not be aware of your child’s unique needs or may not have an understanding or awareness of autism more broadly. Be sure to communicate to your family and friends ahead of a gathering or event, letting them know how to best communicate with your child, and what to expect in terms of your child’s needs.

You should also make them aware of how your child can react to certain situations so that if your child reacts in a way that your friends and family are not used to, they are not caught off guard or take offense. You can also teach your family members how to assist if a meltdown occurs, or at least let them know what you, as the parent, will do to manage the situation. For example, a child who is overstimulated may walk away to avoid the stimulus, which may be confusing to those who don’t know this is how your child will react.

3. Plan or take part in autism-friendly events and activities

Many holiday events can be crowded, loud, bright, and overall overstimulating for a child with autism. Seek opportunities for sensory friendly events that might better meet the needs of your child and family. If autism friendly events are not available, try to attend an event early, or avoid peak periods so that the event is quieter and easier to manage for your child and family. Devices like earplugs or noise-canceling headphones can also be helpful during large events.

4. Plan an “easy escape” to give your child a break from the stimulation

There may be certain holiday events that are difficult to decline or change to suit your child’s needs, such as religious services. If you are attending an event like this with an autistic child, make sure to seat yourself and your child near an exit. If your child becomes overstimulated, you can temporarily leave the event to give them the time and space they need to engage in a calming activity. If a meltdown is taking place, being seated near an exit will allow you to leave the event entirely without causing too much disruption.

5. Have fun!

Remember the holiday season is about enjoying time with family. Try to avoid feeling the pressure to do what others are doing. Do what works for you and your family, whatever that may look like, as long as you are having fun!

Learn more about autism and our Lighthouse Fusion® program

We hope these tips have made navigating autism and the holidays easier for you and your child. Two more ways to help you and your child navigate through life are our autism resources and Lighthouse Fusion ABA therapy program. Explore these materials and learn about all the ways Lighthouse Autism Centers can assist you and your loved one.

We look at some of the key features of a meltdown in a child with autism, such as stimming and distress as a result of sensory overload. This helps you spot meltdowns and equips you with the tools to prevent, prepare, and recover from them.

Tips for Spotting an Autistic Meltdown and How to Handle It 

Autism related meltdowns are often confused with temper tantrums, but while they may appear similar, they are fundamentally different and require a unique approach. Discover the key features of an autism related meltdown, how to handle them, and the best strategies to prevent, prepare, and recover from them. 

What is an autism related meltdown?

Autism-related meltdowns are sometimes involuntary responses to overwhelming/overstimulating situations, feelings, or environments. When an autistic individual becomes overwhelmed or overstimulated by a situation, they may experience extreme distress and temporarily lose control of their behavior. This can trigger a fight, flight, or freeze response, making it difficult for the individual to regulate their sensory processing and behavioral responses. They could express this verbally (shouting, screaming, crying), physically (kicking, lashing out, biting), or in several other ways. 

Autism meltdown vs. temper tantrum

If your child is having a meltdown, it may look like a normal “temper tantrum.” However, while they may appear similar, a meltdown is not a temper tantrum and should not be treated as such.  

While tantrums are most common among allistic children, autistic individuals can experience meltdowns throughout their lives. Next, tantrums are generally goal-oriented and occur in response to an unfulfilled desire. In contrast, meltdowns are related to a trigger and are often not a voluntary response. Finally, meltdowns are not “bad” or “naughty” and should not be punished. Remember that the child or individual experiencing a meltdown is in a state of overstimulation. They will require immediate support both before, during, and after. 

This means that meltdowns are more intense, emotional, longer lasting, and difficult to manage than the average tantrum.  

Qualities of an autism meltdown: What to look out for

There are several signs of an autism meltdown that can help you take the necessary steps to either prevent it or support your child through it.  

These are the most common autism related meltdown signs: 

Meltdowns are preceded by signs of distress 

Meltdowns begin with warning signals, such as external signs of distress. These include physiological and behavioral changes that can be either obvious or subtle.  

Meltdowns involve intense stimming

Signs of distress may include or progress to “stims” (self-stimulatory behaviors) such as rocking, pacing, finger flicking, and slapping. Stims are often self-calming techniques used to help regulate anxiety or sensory input. Intense stimming or other obvious signs of agitation indicate that a meltdown is imminent.  

Supporting your loved one during a meltdown

Wondering how to stop a meltdown? Ultimately, prevention is the best method. You can do very little to stop a meltdown once your child is in the middle of one, but you need to know how to calm and soothe them. During this phase, your child’s behavior may become explosive and uncontrolled. As such, it’s important to move them to a safe, quiet environment, that the triggers are stopped as quickly as possible, and that they are provided with both support and space to work through it in their own time and way. This is not the time to reason, redirect, or teach new lessons or coping skills. 

Generally speaking, the focus should be on sensory and emotional support. This includes: 

• Staying calm and creating a safe environment. 
• Keeping your own frustration or distress in check. 
• Reducing verbal communication using visual representations and “yes” or “no” questions. 
• Focus on what your child is trying to communicate with their behavior, what do they want or need and how can you get it for them? 
• Decreasing sensory stimulation by reducing sensory input in the environment (dimming the lights, turning off the radio/TV, etc.). 

What to do after an autism related meltdown

Meltdowns can last anywhere from a few minutes to a few hours, depending on the severity of the trigger and the way it is managed. Once entering the recovery stage, your child is likely to feel vulnerable and emotionally exhausted. Your continued love and support are necessary as your child may be embarrassed or ashamed of their autism and anger outbursts. It is important to remember that the meltdown was completely involuntary and to reassure them that everything will be okay. It is best not to discuss the incident immediately, as this could retrigger them, but to wait until they are fully rested, recovered, and calm. 

Unlock your child’s potential with Lighthouse Autism Center

Explore more helpful autism resources available from the Lighthouse Autism Center. Here, you’ll also discover our innovative model and creative approach, Lighthouse Fusion ABA therapy, which combines the best practices of behavior analysis and speech therapy to help your child progress in a safe, fun environment.