Great communication can make the experience with your ABA provider much more positive. On the flip side, an ABA center with bad communication can cause you serious frustration. Let’s walk through some ways that you can tell if a center has poor communication skills before you enroll.

Daily, two-way parent communication

If you dropped your child off at an ABA center for 8 hours a day, would you like to know how their day went? Would it be important to know if they had a good day or a bad day? Did they have a lot of behavior issues? Did they acquire a new skill? If an ABA center is not routinely providing you information on how your child’s day went, the center is probably lacking in parent communication skills.

Additionally, just like you should want to know about your child’s time at the center, the supervisors of your child’s therapy program should want to know about your child’s time at home. Did they get a good night’s sleep? Were there any interruptions in their eating? Did they take their medication? These are all things your ABA center should want to know because they may impact therapy.
A high-quality ABA center should have a system in place that creates daily, two-way communication between parent and staff. Such a system makes it easy for parents to know how their child did throughout the day. This communication system also makes it easy for the parent to tell the ABA center about what’s going on at home.

One example of a two-way communication system, is a daily communication binder. A communication binder gets passed between the parent and the center. Upon picking up their child from a day at the ABA center, the parent would also pick up the communication binder. The binder would include notes about how their child’s day went, their successes and their challenges. The parent would take the binder home for the night and could add notes to the binder about anything going on at home that night. The next day when the parent takes their child back to the center, they will also return the communication binder. As a result, both staff and parents will have a better understanding of the child’s progress.

A communication binder is just one example. There can be many other ways that ABA centers provide daily, two-way communication. Just make sure that the center provides a simple, well-integrated system for both the parents and the center to monitor your child’s behavior and skills.

Access to Face to Face time with Staff

Are you able to come into the center any time during the day and talk to the staff? Can you get face-to-face time with the ABA therapists that work with your child?
Generally, ABA centers will have locked doors during regular therapy hours and only individuals with keys or door fobs will be able to enter. A quality ABA center will provide you with the means to access the building during the day so that you can walk in and speak with the staff.

It’s not a great sign if you can’t see a center at all during therapy hours. Often, centers are hiding the chaos and messiness that their less-than-adequate therapy programs are producing. Not to mention, this shows a general lack of willingness to be available and helpful.

Ability to get ahold of BCBA’s managing your Child’s Program

Is it possible for you to email your BCBA during the day and get a response? A quality center will have BCBA’s that are attendant to parents.
You might need to contact your BCBA to let them know that you are worried about something specific regarding your child. Perhaps your child isn’t sleeping very well, is taking a new medication, or something else that you haven’t told the center yet.

If you send your BCBA an email about your child, wouldn’t you want to hear back at some point? Wouldn’t you want to know that they received your email and any action items that are going to come as a result?
If you never hear back from your BCBA, that’s a red flag. Perhaps your BCBA has an overly large case load and is unable to focus much attention on each individual child. It could also mean that your BCBA simply doesn’t care about communicating with parents; which is of course a huge problem as well.

Center Communicates with your Child’s other Providers

Is your child is receiving more medical and therapeutic services than just ABA therapy? Your child might have an occupational therapist, speech pathologist, child psychiatrist, or pediatricians to name a few. The school they may attend spends time with them every day and understands their skills and behaviors in a classroom setting. A quality ABA center will often seek to consult with these professionals regarding your child’s therapy program.

Here’s an example. Your child has been receiving speech therapy from a speech pathologist, once per week. Your child then starts going to an ABA center. This is a relationship that the supervising BCBA will want to start from day one! The program supervisors can collaborate with your child’s speech pathologist on ways to develop their skills and incorporate speech goals into their daily ABA program. Through other therapy professionals, the ABA center gets insight and expertise into your child that they wouldn’t have otherwise. If the ABA center never consults with your child’s other therapy providers, they are ignoring possibly valuable information that can enhance the therapy’s effectiveness.

Center Communicates with your Child’s School

Let’s not forget what can be one of the most important goals of ABA therapy: transitioning your child back into a school setting. If an ABA center isn’t working with your child’s school, principal, and teacher before a transition, a transition into school will prove to be difficult. Most children with autism will often need an Individualized Education Plan(IEP) in the public school system, which is primarily left up to the parents to initiate. If your child needs an IEP, you want to know that the ABA center is going to be available as a support for certain aspects of the IEP. A Quality ABA center might provide teachers with information about your child’s goals, support systems, behaviors, preferences and other things that can better equip school teachers to provide a positive learning experience.

Anthem Insurance Cos. Inc. will pay almost $1.63 million to end
claims that it violated federal benefit laws by placing certain
caps on the coverage of therapy treatments for children with
severe autism disorders.

Anthem also agrees to stop using guidelines that base coverage
of applied behavior analysis therapy for autism solely on an
individual’s age, according to a motion seeking approval of a
class action settlement filed March 23 in the U.S. District Court
for the Southern District of Indiana.

If approved, the settlement will provide relief for at least 201
children and allow class counsel to seek fees of up to $508,345.
The estimated average payment to class members will be
$5,052, with payments ranging from $2.02 to more than $36,000,
according to court documents.

The proposed deal would end a three-year lawsuit that accused the insurance giant of violating federal mental health parity law when it limited coverage for a 13-year-old boy’s autism treatment to 20 hours per week. The settlement comes one year after a federal judge held that Anthem satisfied Indiana’s autism mandate, which requires insurers to cover treatment for autism spectrum disorder, by covering 20 weekly hours of treatment instead of the 40 hours requested. Anthem joins a growing list of companies that have settled claims over coverage of ABA therapy for autism, including United Healthcare Services Inc., T-Mobile USA Inc., and Applied Materials Inc.

To read the full article, please visit https://bit.ly/2Een9XG

Prenatal multivitamins linked to lower autism risk

A new study suggests prenatal multivitamins may reduce a child’s risk of developing autism. The study analyzed more than a quarter-million mother-child pairs in Sweden and found a link between multivitamin use and risk of the neurological disorder.

It’s estimated that 1 in ever 68 people in the United States has a form of autism, boys more than girls. And since mothers-to-be are already advised to take prenatal vitamins, this could be an added benefit.

“Multivitamin use with or without added iron or folic acid was associated with a lower likelihood of having a child with an intellectual disability, compared with mothers who did not use supplements,” said lead researcher Elizabeth DeVillbiss, a Ph.D. graduate in epidemiology and biostatistics at Drexel University’s Dornsife School of Public Health. In fact, the odds of autism in the multivitamin group were 30 percent lower.

Autism, experts believe, is caused by genetic and environmental factors. It most likely starts in the womb, and the mother’s diet during pregnancy might have an influence, said DeVillbiss.

However’, it’s too early to recommend multivitamins specifically for lowering autism risk. The study couldn’t yield definitive cause and effect proof. It was observational and didn’t keep track of specific supplements taken, timing, and the doses. Plus, the results of other studies have been inconsistent.

Even so, it’s recommended that pregnant women take multivitamins- before and after pregnancy while they are still breast-feeding.

To read the full article, please visit https://drexel.edu/news/archive/2017/october/multivitamin-use-during-pregnancy-linked-to-lower-risk-of-autism-with-intellectual-disability

A Guide to Health Insurance for Children with Autism

Health insurance has changed dramatically in the last year, with many companies, like Anthem Blue Cross Blue Shield and IU Health, leaving the individual market in Indiana. This means there are fewer choices for 2018 making it important to begin shopping early.

The Affordable Care Act (ACA)’s open enrollment period allows individuals to enroll in a plan through the Health Insurance Marketplace. Any family who has a child with autism and wants access to therapy should have a healthy insurance plan covering ABA services. So, for those that do not currently have health insurance, or have group coverage not covering ABA Therapy, now’s the time to enroll.

To obtain insurance coverage in 2018, you mus purchase a policy between November 1 and December 15, 2017. While you may purchase a policy anytime during this period, the earliest the plan will be effective is January 1, 2018. The good news is ACA plans are fully funded and are mandated to include coverage of autism services. Plus, it doesn’t affect the cost of the plan in any way. The Insurance Department at Lighthouse Autism Center has been working diligently with an insurance broker to identify plans that will most benefit families with autism.

To learn more or inquire about purchasing a policy, you can contact Lighthouse Insurance Manager, Michele Rohyans, at 574-387-4313, or micheler@lighthouseautismcenter.com.

When asked how Lighthouse can help families, Sandy Maggioli said, “We will help families find a policy that is right for them and even help them apply for grants to cover their out-of-pocket expenses. It is our goal to help families in any way we can, starting with the insurance process.”

The Rutgers Center for Adult Autism Services (RCAAS) aims to be a national model, offering a mix of vocational and residential programs for adults with autism to work and live within a universal community.

An estimated 1 in 68 children nationally – and 1 in 21 in New Jersey – are diagnosed with an autism spectrum disorder (ASD). The RCAAS aims to address a gaping need for young adults with autism: Through high school, children with autism can get tutoring, mental health services, transportation and other resources to accommodate their needs. But, once they leave public school systems, services diminish greatly, leaving adults with little support outside of their families.

The center’s research will lead to creating a model for similar centers and training educated staff to work with adults with autism.

“Our aim is to make a difference in the lives of all adults with autism by creating a best-practices training program for students across all disciplines – business, medical, art – who work with adults with an autism spectrum disorder,” says Christopher Menente, the RCAA’s Executive Director.

The center has two phases – a $20 million facility for the workday program and a pilot residential program for 20 adults with autism who will work on campus and live alongside Rutgers graduate students in an apartment-style residence.

To read the full article, please visit https://bit.ly/2qPhnbB

What you need to know:

The landscape of health insurance has dramatically changed over the course of 2016, with many companies, such as Unitedhealthcare, leaving the individual market in Indiana. Unfortunately, there are fewer choices for 2017, which makes it more important to begin shopping early.

A health insurance plan covering ABA services is necessary for any family who has a child with autism and wishes to access therapy. For those that may not currently have health insurance, or have group coverage that does not offer coverage for ABA therapy, now is the time to enroll.

The Affordable Care Act (ACA) created a new way for families to enroll in insurance – it’s called open enrollment. This is a yearly period when individuals can enroll in a plan through the Health Insurance Marketplace. To obtain insurance coverage for 2017, you must purchase a policy between November 1, 2016 and January 31, 2017. While you may purchase a policy anytime during this period, the earliest the plan will be effective is January 1, 2017.

The Insurance Department at Lighthouse Autism Center has been working diligently with an insurance broker to identify plans that will most benefit families with autism. To learn more or inquire about purchasing a policy, you can contact Lighthouse Insurance Manger, Michele Rohyans, at 574-387-4313 or micheler@lighthouseautismcenter.com.

When asked how Lighthouse can help families, Sandy Maggioli said, “We will help families find a policy that is right for them and even help them apply for grants to cover their out-of-pocket expenses. it is our goal to help families in any way we can, starting with the insurance process.”

Genetic Research Could Lead to Earlier Autism Diagnosis

In an article published in Behavior Genetics, researchers at Ben-Gurion University of the Negeg (BGU) say they’re closer to understanding the genetic basis of autism. The researchers found distinct characteristics in genes associated with autism that distinguish them from other brain-specific genes. They believe this will allow the identification of additional autism genes, leading to an earlier diagnosis of autism.

“We are now a step closer to understanding the genes associated with autism and understanding the biological process involved in the disease,” says Dr. idan Menashe, who along with his colleagues, Erez Tsur and Professor Michael Friger, is a member of the BGU Department of Public Health in the Faculty of Health Sciences.

One particularly distinct characteristic of autism genes the researchers found is their exceptional genomic length, which is longer than other brain-expressed genes of closely related diseases such as Alzheimer’s and schizophrenia.

“Our findings suggest that ASD genes have evolved under complex evolutionary forces, which have left a unique signature that can be used to identify new ASD candidate genes,” the researchers add.

To read the full article, please visit sciencedaily.com/releases/2016/10/161006102944.htm.

Lighthouse Autism Center has recently completed the second episode of our Autism Minute series. The Autism Minute is a video series created by Lighthouse Autism Center to provide helpful tips and resources for parents and caregivers of children with Autism. Each series is led by one of our 10 full-time Board Certified Behavior Analysts, and covers a topic we believe to be relevant to caregivers.

The second episode of the Autism Minute is about Instructional Control and your child. The video discusses what Instructional Control is,  how to gain it with your child, and the benefits that come from having instructional control, including gaining respect from your child and forming a better relationship with them.

[youtube_sc url=”https://www.youtube.com/watch?v=aFx6bSxRiMI” autohide=”1″]

No MMR-Autism Link in Large Study of Vaccinated vs. Unvaccinated

Despite repeated evidence to the contrary, there are those who continue to assert a link between the measles-mumps-rubella (MMR) vaccine and autism spectrum disorder (ASD), leading to lower vaccination levels.

In the largest-ever study of its kind, researchers again found that the MMR vaccine did not increase risk for ASD. This proved true even among children already considered at high risk for the disorder.

The April 21, 2015 issue of the Journal of the American Medical Association (JAMA) reported the results for the study, and an article appeared on the Autism Speaks website (autismspeaks.org).

For the study, researchers analyzed the health records of 95,727 children, including more than 15,000 children unvaccinated at age 2 and more than 8,000 still unvaccinated at age 5. Nearly 2,000 of these children were considered at risk for autism.

The study found no association between the MMR vaccination and increased ASD risk. It also found no evidence that the MMR vaccination was associated with an increased risk of ASD among children who had older siblings with ASD.

To read about this important study, please go to the article on the Autism Speaks website by using this link: https://bit.ly/1QfpH9P.

Autism-Friendly Amusement Parks in the Midwest

We recently came across an article in Indy’s Child that provided a list of amusement parks in the Midwest that provided unique supports for families with special needs. If you are looking for a family outing this summer, take a look at the list of parks below and see how these parks can accommodate your special needs family member to make the whole family experience better.

1.) Holiday World & Splashin Safari, Santa Claus, IN

They offer a Holiday World Ride Boarding Pass to individuals who are unable to wait in lines. It allows the individual and three guests to check in at a ride and return later without actually having to wait in line. For more information visit www.holidayworld.com/help-information/accessibility

2.) Kings Island and Cedar Point, Mason OH and Sandusky OH

Kings Island and Cedar Point both have a Boarding Pass Program which allows those who are unable to wait in ride lines and three guests to check in and return later to avoid the crowds. Visit Guest Services to request a pass once arriving at the parks. For more information visit www.visitkingsisland.com/plan-a-visit/guests-with-disabilities and www.cedarpoint.com/plan-a-visit/guests-with-disabilities

3.) Kentucky Kingdom and Hurricane Bay, Louisville, KY

Similar to other parks they offer an Attraction Boarding Pass at Guest Services that allows those who are unable to wait in ride lines and three guests the option to skip lines by going to the ride exit and speakign to an employee who will help them board the ride. Additionally, for those with sensory sensitivities, the park offers a quiet resting place for two people in the Carousel Courtyard and Health Services.

For more information visit www.kentuckykingdom.com/faqs-and-policies/rider-requirements/

4.) Six Flags Great America, Gurnee, IL
They offer an Attraction Access Program that allows those whoa re unable to wait in lines and three guests the option to “check-in” at a ride and return later. Unless you request before your trip, you will need to bring a doctor’s note to the park.

For more information visit